Little Emily
Dover was born a normal baby and even weighed less than her older siblings did
at birth but as the weeks went by, she suddenly began
experiencing "exceptional" growth and also suffered from
"constant health issues".
Little Emily |
At 4 months,
Emily was as tall as a 1-year-old. She was still a toddler when she developed
cystic acne, breast buds and strong body odour and this left her parents
shocked. The first time she saw her period when she was 4 years old, she had no
idea what it was and thought she had pooed in her undies. The little child was
then taught how to put panty liners on for menstruating.
"My foo
foo is bleeding," Emily tells her parents whenever she gets her period.
Within the
past 12 months, she has grown hair on her forehead, back and vagina. Now aged
5, she is going through menopause and all the other often distressing
side effects that older women experience.
Her mum, Tam
Dover from Gosford in Australia, told Mirror Online her beautiful daughter is
body conscious and aware that she is different from other children her age but
she can't understand why.
Recalling the
moment Emily started menstruating, Tam, 41, said: "Because she has trouble
toileting, she thought she had done a poo in her undies. We used panty
liners and it didn't last more than a day."
She added:
"She only had her period again the other day. She hasn't even had a
chance to be a little girl. She's having to learn how to put panty liners
on for menstruating."
She continued:
"It's difficult to explain to her what is happening. She knows she's
different, she knows she's much bigger than other children. She's very
conscious of her body."
Emily, who
weighs around seven stone, was born perfect "in every way". She was
smaller than her older siblings had been at birth.But after just a week,
things took a turn for the worse. She became unsettled, started crying out in
pain and had difficulty sleeping. She also started growing, rapidly.
Tam, who is
also a mum to a 22-year-old and 20-year-old said: "Emily is my
youngest child and she was also my smallest baby after birth. She was 8lbs. The
child before her was 10lbs. The first week was pretty normal. After that,
(things) turned quite bad, she wasn't sleeping well, was in pain."
She was
finally diagnosed with Addisons disease this summer after years of
doctor's trips and tests. The disorder means her adrenal glands don't
produce enough steroid hormones. She also has central precocious puberty -
where puberty starts too early in children - congenital adrenal hyperplasia and
autism spectrum disorder. And she has sensory processing disorder and
anxiety disorder.
When Emily
began suffering from constant health issues at four months of age, doctors told
the parents that the bouts of sickness and infections was likely a
virus contracted at daycare. She also started complaining of painful
breasts and stomach cramps and her family was referred to the Pediatric Acute
Care Unit at Wyong Hospital. At the hospital, a series of tests were run
and Emily's hormone levels came back as though she was a pregnant woman,
according to her mum.
"Emily
was then 3 years of age; she had breast buds, strega on her legs, excess body
hair, and acne," said Tam, who works in a local public
hospital. "Something was very wrong with our little girl."
Despite the
tests, Emily's conditions were reportedly so complex that medics were unable to
give a "definite answer". She was considered a "diagnostic
challenge" by medics and was in "constant pain" from her growth.
She was eventually diagnosed with Addisons disease and is due to start her
treatment of hormone replacement therapy that is a 3 monthly injection.
Tam said:
"It is $1,455 (£1,105) per shot, and will throw her into menopause, with
all the side effects that 50+ year old women have, and as we are both working,
we are not entitled to health care /pension card rebates. So this
treatment, along with her other many appointments and therapies, are covered by
us solely. We work full time each and each time Emily is sick, it is days
off, mostly without pay, as we have exhausted all of our leave
entitlements."
Like other
girls her age, Emily wants to wear ball gowns, dress up and run around. But she
still struggles to go to the toilet independently. Tam said although she
and Matt, a security guard, don't have a lot of family around them, they are
"blessed with some close friends".
"But
through this we are mostly alone," she added.
The couple are
said to be "at a loss financially", unable to raise money for all of
the treatment their daughter desperately needs. Her parents Tam and Matt,
40, have created a Go Fund Me page to help with her medical expenses.
"What we
are hoping is to raise some much needed money to get Emily more treatments and
to cover the costs of her on going medical care," Tam wrote.
Since setting
up the GoFundMe page a couple of weeks ago, Emily's family have been approved a
health card which will help with the cost of medication. But "it still
doesn't provide access to NDIS (Australia's National Disability Insurance
Scheme) services."
Tam added
that, today, her daughter regularly suffers from "very painful" bone
growth, sore and itchy breasts and sensory issues. Some days, she wakes up
with swellings on her wrists and ankles.
Due to her
condition, Emily suffers bullying at daycare and will soon have to face
"being the different kid" at primary school and her parents fear that
already.
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